Life with Lyme Disease

Days of our Chives

Life is is filled with infinite choices. With  Lyme disease, your choices are ruthlessly limited. I’m always measuring how many matches are in my book and deciding on how to use them. I don't get to cram in as much as a normal person can in a day. Instead, I basically...

Four Years Treating and Babesia Just Won’t Quit Me

I should have taken advantage of the rain this winter practicing rain drop photos, but Babesiosis is a bitch. Sometimes I think if it were only just Lyme disease and just Borrelia I had to manage, it would be a piece of cake. I've made tons of progress treating...

Laid Off from Lyme Disease

Is this drop in focus? I can't tell. It took a week for my new Lyme disease medication to arrive. It had to be compounded. I'd been relegated to the sofa. Headaches and vision problems have been, well, a problem for being able to function or focusing the lens of a...

My Two Essential Ingredients in Lyme Disease Treatment

Thank dog and praise cheeses for these two. They've literally held me together the last few weeks as my health plummeted into Lyme disease hell. Surviving on 2-3 hours of sleep per night and all the other little goodies that come along with Neurological Lyme plus a...

Best. Medicine. Ever.

August and September have been a back slide with Neurological Lyme disease. Because Bicillin was on shortage, I had to go back on oral antibiotics. But now that it's back on the market, I'm back on Bicillin shots which bypass the GI and keep the damage to the GI...

Breakfast of Warriors

I used to measure PRs for a run or a bike ride. Now I measure PRs for how long I can stay off antibiotics before Neurological Lyme Disease returns. I had a 5 week PR a few months ago. Then recently a 2 week PR. I think I'm doing this Lyme-athlete thing all wrong. Yup,...

Home Nursing at its Finest

I'm so lucky to have two nurses during IVIG treatment. One to take my vitals and one to supervise the nurse! The cracker inspects everything concerning his mom, even the blood pressure cuff. He's conflicted. He likes Bob, but he's unsure of his intentions or of him...

Hi! I Missed You Guys!

Oh Internet and readers, can you ever forgive me? I never write, I never post pictures. I could be dead in a ditch for all you know. But I have a reasonable excuse. As you know, last month I had a relapse and decided to do a 3 week course of IV antibiotics (Invanz for...

Taking Back My Power

The first thing Lyme disease does to you is take away your power. I'm taking it back.   Lyme Warrior -- Yoga Every Damn Day  --- Lyme Disease Awareness Month  -- Take a Bite out of Lyme Challenge Fact: There is no place in the body that the pathogen causing Lyme...

Conflict Resolution

Today, a personal note on living with Lyme Disease for Lyme Disease Awareness Month. By now you've probably heard so many stories of people with Lyme and their symptoms. Maybe you've heard it brings joint pain and chronic fatigue. Or maybe you've heard it makes people...

Paleo! WTF? Halibut with Pancetta, Basil & Mushroom Butter Sauce

If someone told me I'd eventually go Paleo, I would have died laughing. Being gluten-free was hard enough! But after a month of having a Paleo diet, the pain levels in my body keep dropping week to week. Treating Lyme disease is not just killing pathogens. Lymies have...

Unfurling Flower of Wellness

It's Lyme Disease Awareness Month Peeps! I'll be posting lots of educational and fun posts related to Lyme disease on Social media and a little on this blog. I thought I'd share an update of my progress along with a macro shot of an unfurling flower frond for those...

Thirty-six

It's been roughly 36 months since I started treatment for Lyme disease. I was 36 years old when symptoms first appeared and 11 years later, I'm still battling it. Here are the stats to-date: 8 Years misdiagnosed 12 Doctors who missed the diganosis 36 Months of...

Springing New Life

Up in the Grill 362/365 Friday I went for my first IV IG infusion treatment. Since it's a blood product and risky, the nurse has to monitor the patient's vitals and symptoms every 30 minutes. It's about 4-6 hour drip depending on how the patient tolerates it. I went...

Another Fallout of Lyme Disease

Early Cherry Blossoms -356/365 CVID, Common Variable Immunodeficiency. Another fallout from complications due to Lyme disease. When researchers say Lyme disease is AIDS-like, this is what they mean. Basically I don't make antibodies as a normal person.  Researchers...

Even Computers Get Lyme Disease

Even Computers get Lyme Disease - 344/365 "It's as if there is some bug so deep in your PC that no virus program can find or fix, and it gets carried over to each new PC you get," said MWD about my latest technology drama. A bug so well-hidden that no test can...

Wine Goals

Wine Goals - 335/365 "My number one goal is to get my patients drinking again," said my Lyme doctor. You gotta love doctors who have their priorities straight. It's surreal to be wine-less for the past three years. When you're sick and your liver is on overdrive...

Progress

Progress - 323/365 I didn't want to say anything for fear of jinxing myself, but yes, I'm back on the yoga mat. Over the last 3 years I've been on and off the mat, not able to maintain a consistent practice because mobility was just too painful. Last year, I gave up...

BLT Canapes : Happy New Year

BLT Canapes for Appetizer Night - 313/365 "What do you want for New Year's Eve dinner," I asked Mr. Wild Dingo. "BLT's," he replied. So I made these bad boys: BLT Canapes with basil and garlic mayonnaise. They are a bit tedious to make but super simple and oh so...

Absence of Evidence

Absence of Evidence is not Evidence - 289/365 Each day I walk the forest trails in back of my house and I inevitably walk through 1 or 2 strands of errant spider webbing. It's impossible for anyone to see it, but I can feel it on my face or bare arms in the summer. No...

Unfathomable Boundaries

Leaf  - 281/365 Recently, I started calling my chronic illness Lyme-MSIDS, a named coined by Dr. Richard Horowitz who's treated thousands of Lyme patients successfully. Lyme-MSIDS stands for Lyme-Multi-System Infectious Disease Syndrome. The reason Lyme patients don't...

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